You don’t have to navigate your neuromuscular disease journey alone. As a member of the MDA Community, one of the many ways you can connect with others and share your personal story is by joining an MDA Community Group. Community Groups are supportive groups that provide a safe place to gather resources, interact meaningfully with others, and exchange valuable information with others in the neuromuscular disease community.
MDA offers four different Community Groups for you to choose from including:
Adult Community Support Group
- Adult Group for adults ages 18+
- Third Wednesday of the month, 5 pm CT
Pediatric Community Support Group
- Pediatric Group for parents/guardians with a child under the age of 18 (children are welcome)
- Third Wednesday of the month, 4 pm CT
ALS Community Support Group
- ALS Group for those living with ALS and their family members
- Third Thursday of the month, 5 pm CT
Gene Therapy Community Support Group
Gene Therapy Community Groups are open to parents/guardians of individuals with DMD (age 0-17) and SMA (age 0-2).
- Parents/Guardians of children with DMD (age 0 – 17) or SMA (age 0-2) who HAVE received Gene Therapy or completed antibody testing
Meeting Dates: 1st Tuesday of the month
Meeting Time: 12 pm – 1 pm CT - Parents/Guardians of children with DMD (age 0-17) or SMA (age 0-2) who have NOT received Gene Therapy or completed antibody testing
Meeting Dates: 1st Thursday of the month (January will be the 2nd Thursday (1/9) due to the New Year
Meeting Time: 12 pm – 1 pm C
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