Families are at the heart of MDA's mission. We wake up every morning to create more hope and answers for families living with muscular dystrophy and related neuromuscular diseases that take away physical strength and mobility. We fund groundbreaking research for promising treatments and provide families with the highest quality care from the best doctors in the country.

Here are the ways we’re helping achieve these goals so families can live longer and grow stronger.

Click here to learn more.

Hours
Monday: 9:00 AM - 5:00 PM
Tuesday: 9:00 AM - 5:00 PM
Wednesday: 9:00 AM - 5:00 PM
Thursday: 9:00 AM - 5:00 PM
Friday: 9:00 AM - 5:00 PM
Saturday: CLOSED
Sunday: CLOSED

Donald S. Wood - President and Chief Executive Officer
Online and Virtual Assistance

You don’t have to navigate your neuromuscular disease journey alone. As a member of the MDA Community, one of the many ways you can connect with others and share your personal story is by joining an MDA Community Group. Community Groups are supportive groups that provide a safe place to gather resources, interact meaningfully with others, and exchange valuable information with others in the neuromuscular disease community.

MDA offers four different Community Groups for you to choose from including:

Adult Community Support Group

  • Adult Group for adults ages 18+
  • Third Wednesday of the month, 5 pm CT

Pediatric Community Support Group

  • Pediatric Group for parents/guardians with a child under the age of 18 (children are welcome)
  • Third Wednesday of the month, 4 pm CT

ALS Community Support Group

  • ALS Group for those living with ALS and their family members
  • Third Thursday of the month, 5 pm CT

Gene Therapy Community Support Group

Gene Therapy Community Groups are open to parents/guardians of individuals with DMD (age 0-17) and SMA (age 0-2).

  • Parents/Guardians of children with DMD (age 0 – 17) or SMA (age 0-2) who HAVE received Gene Therapy or completed antibody testing
    Meeting Dates: 1st Tuesday of the month
    Meeting Time: 12 pm – 1 pm CT
  • Parents/Guardians of children with DMD (age 0-17) or SMA (age 0-2) who have NOT received Gene Therapy or completed antibody testing
    Meeting Dates: 1st Thursday of the month (January will be the 2nd Thursday (1/9) due to the New Year
    Meeting Time: 12 pm – 1 pm C

Click here for more information

MDA Resource staff are available Monday through Friday 9:00 - 5:00 PM CT
Updated within the last year

You don't have to navigate your neuromuscular disease journey alone - we're here to help. The MDA Resource Center is available to provide one-on-one support via phone or email for individuals and families looking for an overview of disease information in our program, resources, activities, and more.

The Resource Center is your one-stop shop for information such as:

Updated within the last 5 months.

While your MDA Care Center visit will vary depending upon whether it’s a diagnostic evaluation or follow-up visit, one thing to know is that you’ll find dedicated teams of expert health professionals skilled in the diagnosis and medical management of neuromuscular diseases. Such management ranges from measures for controlling symptoms to medical interventions designed to enhance quality of life and independence.

Click here to learn more.

This Care Center serves children and youth.

Hours
Monday: 8:00 AM - 5:00 PM
Tuesday: 8:00 AM - 5:00 PM
Wednesday: 8:00 AM - 5:00 PM
Thursday: 8:00 AM - 5:00 PM
Friday: 8:00 AM - 5:00 PM
Saturday: CLOSED
Sunday: CLOSED

Updated within the last 5 months.

While your MDA Care Center visit will vary depending upon whether it’s a diagnostic evaluation or follow-up visit, one thing to know is that you’ll find dedicated teams of expert health professionals skilled in the diagnosis and medical management of neuromuscular diseases. Such management ranges from measures for controlling symptoms to medical interventions designed to enhance quality of life and independence.

Click here to learn more.

This Care Center serves adults.

Hours
Monday: 8:00 AM - 5:00 PM
Tuesday: 8:00 AM - 5:00 PM
Wednesday: 8:00 AM - 5:00 PM
Thursday: 8:00 AM - 5:00 PM
Friday: 8:00 AM - 5:00 PM
Saturday: CLOSED
Sunday: CLOSED

Updated within the last 5 months.